Donate to Team Margaret & Owen
May is Cystic Fibrosis Awareness Month and we are raising awareness and funds for cystic fibrosis through our GoFundMe, as well as through our Purple Collection.
This is a personal cause for us, as Carissa's daughter, Margaret, age 3, was born with CF.
For those of you who don’t know what cystic fibrosis (CF) is, it is a genetic disease that affects about 30,000 people in the US. It affects a person’s lungs and digestive system with sticky mucous. Because of this sticky mucous, a person with CF is more likely to have problems with food absorption and bacteria in their lungs. Their lungs become damaged over their lifetime resulting in low lung capacity, sometimes organ transplants, and shortened life expectancy for most.
Cystic Fibrosis is an orphan disease in America. That means that there is not a large enough population that is affected by it, therefore there is no government funding into research for this disease. This is where the Cystic Fibrosis Foundation comes into play. The CF Foundation has raised millions of dollars to research and create medications that make it easier to live with CF, extend the life expectancy, and sometimes even cure the defect in some. The CF Foundation has had some amazing breakthroughs in the recent past with medications that can correct the defect for some, but not for all of those living with CF. They are committed to keeping going until they have found a cure for all of those with cystic fibrosis.
The great thing about the CF Foundation is your donation will go directly to fund this research and our two kids will be affected by that in their day-to-day life. They already do see the results in a lot of the medications that they take daily.
We are grateful for anything that you can give—it all adds up.
Thank you for supporting our cause! XO